Poor sucking and swallowing also related to developmental delay
Feeding progressed slowly with time and eventually discharged on anti-reflux milk with Losec.
Discharged on 05/04/08: 2.75kg; head circumference: 33cm; hearing test: normal
First Synagis given 26/03/08 then given monthly during the first RSV season.
Referred for neurodevelopmental physiotherapy after first follow up
Finn subsequently developed severe feeding difficulties due to GER, very poor sucking and swallowing. This necessitated a Nissens fundoplication with insertion of PEG intragastric tube for gastric feeding
Problems of poor weight gain persisted, requiring consultations with pediatric gastroenterologist and dietician.
He was maintained on a combination of intragastric bolus and continuous feeding by infusion pump
Slow progressive weight gain was eventually achieved this way using elemental feeds of Neocate and Peptamen Junior.
He has maintained this slow progressive weight gain but this has not been sufficient to achieve catch up growth
At 15 months he was 7.6kg, length: 71.5cm, head circumference: 42.5cm
He is unable to establish any significant solid intake achieving at most 1-2 teaspoons daily
He is making slow progress with motor development and requires ongoing physiotherapy, occupational therapy and speech therapy. The latter is especially important for his poor swallowing and significant sensory integration problems resulting in his hypersensitivity to solids and inability to establish solid feeding